May 20

Diabetes Blog Week: Day 6 – Saturday Snapshots

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Day 6: Saturday Snapshots

Back for the third year, let’s show everyone what life with diabetes looks like! With a nod to the Diabetes 365 project, let’s grab our cameras again and share some more d-related pictures. Post as many or as few as you’d like. Feel free to blog your thoughts on or explanations of your pictures, or leave out the written words and let the pictures speak for themselves.


A little late with this post, but I have a good excuse! I graduated yesterday, had a party, and celebrated. So they may not be d-pictures but diabetes was apart of this all day! My pump crossed the stage with me! And my pump helped me eat that cake!

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You can find all the participants for today’s topic here: Saturday Snapshots Link List

May 18

Diabetes Blog Week: Day 5 – What They Should Know

What is Diabetes Blog Week? Click the banner for more information!

Day  5: What They Should Know

Today let’s borrow a topic from a #dsma chat held last September.  The tweet asked “What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”.  Let’s do a little advocating and post what we wish people knew about diabetes.  Have more than one thing you wish people knew?  Go ahead and tell us everything.


I’m in the midst of boxes and cleaning supplies since I will be moving out of my rental on Sunday. Tomorrow is dedicated to graduation ceremony and party; therefore, today is cleaning and packing. So anyway… this topic is something I think about often so I have bullets of information I want those without type 1 diabetes to know. Here is goes:

  • Eating abnormal amounts of sugar did not cause this disease
  • In moderation, I can eat whatever I wish with proper insulin dosage
  • I will not die eating cake
  • Sugar free isn’t necessarily better – there’s this thing with sugar alcohol that (for me) acts almost the same. I’d rather enjoy the real stuff
  • Yes I am part robot – it’s called an insulin pump. Without it I would be on shots multiple times a day. Personally, my pump is my lifeline
  • T1 Diabetes is not the same as T2 Diabetes
  • Management of T1 Diabetes is a full time job 24/7/365. There is never a break, paid vacation or holidays. It’s something that we live with and deal with on a daily basis. Sure there’s good days and bad days, but there’s never a day that goes by without diabetes being on the mind
Those are just a few of the things I want people to understand; however, the #1 thing that I want people to know:
Never tell me “Oh I could never do that.” That hits a nerve for me because I didn’t choose this disease and if it were you who had T1 Diabetes, you would have to do what I do.
My biggest hope (besides a cure of course) is that more people will educate themselves and understand what T1 Diabetes is.

You can find all the participants for today’s topic here: What They Should Know Link List

May 17

Diabetes Blog Week: Day 4 – Fantasy Diabetes Device

What is Diabetes Blog Week? Click the banner for more information!

Day  4: Fantasy Diabetes Device

Today let’s tackle an idea inspired by Bennet of Your Diabetes May Vary.  Tell us what your Fantasy Diabetes Device would be?  Think of your dream blood glucose checker, delivery system for insulin or other meds, magic carb counter, etc etc etc.  The sky is the limit – what would you love to see?


This is my kinda post! I love technology. Love Love Love. I’m also a developer so I can develop apps and websites… combine diabetes with the tech part of my life and I’ll be happy as can be!

Here are my three wishes for diabetes technology all together:

  • Bolus/Basal options from my meter
  • Even better…. a smartphone (iPhone in particular for me) app that allows bolus/basal control options
  • A cloud based system for all data. The data would be visually appealing and goals could be set so those with diabetes could automatically see how they are progressing. (I could build this if the companies allowed me to access info from meters, pumps, cgms, etc).
With the new technology already coming out.. iBGStar meter (I want so bad, waiting for more insurance companies to cover) and the t:slim pump (awesome, but I think I’d miss my CGMS integration) I’m very excited for the future of diabetes technology. Let’s hope one day that technology could offer us up a cure!

You can find all the participants for today’s topic here: Fantasy Diabetes Device Link List

May 16

Diabetes Blog Week: Day 3 – One Thing to Improve

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Day  3: One Thing to Improve

Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at.  Today let’s look at the flip-side.  We probably all have one thing we could try to do better.  Why not make today the day we start working on it.  No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!


I’m a little late getting to this post! I’m currently busy with finals week and preparing to graduate from college on Saturday! Super excited :) But anywho…

One thing to improve diabetes-wise would be my eating habits. The only thing I really removed from my diet after diagnosis was sugar drinks (juice, non-diet soda, etc.). Otherwise I eat bread, pasta, cupcakes, cake, fast food etc. I don’t view anything as off limits except the previously mentioned drink items. I realize that these items can be eaten and should not be viewed as off limits; however, they should be eaten in moderation – not on a daily or weekly basis.

I really want to learn to eat healthier because I think it’ll help (I hope anyway) my management of my diabetes. I’ll admit I ate what I did because it was easy in college, but whenever I did eat good meals – low carb specifically – I felt better. For example, my finance made me grilled fish, green beans, and squash. It was delicious and not many carbs. My hope is that since I’m moving in with him after graduation he will continue to cook for me! haha *wishful thinking*.

Overall I want to gain better management of my diabetes and I feel I could achieve this by starting with better management of my food intake.

 


You can find all the participants for today’s topic here: One Thing to Improve Link List

May 15

Diabetes Blog Week: Day 2 – One Great Thing

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Day  2: One Great Thing

Living with diabetes (or caring for someone who lives with it) sure does take a lot of work, and it’s easy to be hard on ourselves if we aren’t “perfect”.  But today it’s time to give ourselves some much deserved credit.  Tell us about just one diabetes thing you (or your loved one) does spectacularly!  Fasting blood sugar checks, oral meds sorted and ready, something always on hand to treat a low, or anything that you do for diabetes.  Nothing is too big or too small to celebrate doing well!


So this post is kinda hard for me because I just do what I need to do in order to manage my diabetes. I never thought about it as doing something spectacularly, but I guess after thinking about this I realize how much I could improve on. So I’ll call this the “pat myself on the back” post because I feel like I don’t do anything spectacularly, but there is one thing I would pat myself on the back for. That is seeing my doctor consistently. Since my diagnosis 4 years ago (Sunday was 4 years!), I have seen my doctor every 3 months. I have had an A1C every 3 months. I pat myself on the back for this because it’s with a busy college schedule the last 4 years I could have easily made excuses to not go; however, with my doctor being conveniently located in a building directly off campus (I often park behind the building and walk through the parking lot to get to campus), it has been easy to schedule appointments between classes.

My only hope is that with graduation almost 4 days away, that I can keep up the consistent appointments after getting a full time job and moving to a new city. I know it’s important so I will do my best to keep patting my back for achieving this.


You can find all the participants for today’s topic here: One Great Thing Link List

May 14

Diabetes Blog Week: Day 1 – Find a Friend

What is Diabetes Blog Week? Click the banner for more information!

Day 1: Find a Friend

It seems the most popular thing about Diabetes Blog Week is that it helps us find blogs we weren’t reading yet and connect with some new blog friends.  With that in mind, let’s kick off Diabetes Blog Week by making some new connections.  Think about the d-blogs you read that you think we may not know about and introduce us to one that you love!!  Let’s all find a new friend today! 


I’m pretty sure everyone who reads my blog reads all the blogs I read, so I don’t really have a new friend to introduce, but I’ll post my current RSS feed favorites here; the ones I read consistently. Perhaps you can find a new friend through one of them. I’m always open to reading more blogs and so far I’ve been able to fairly keep up with my list (great procrastination tool) so please post your blog in the comments if it’s not listed!

1. Six Until Me

2. This is Caleb

3. Texting My Pancreas

4. Typical Type 1

5. Bitter~Sweet

6. D-Mom Blog

7. Arden’s Day

8. Diabetes Mine

9. *Arnold and Me*

10. Diabetes Talk Fest

 

As I said, I’m always looking for more – so please add yours! Last time I checked 177 people were participating in Diabetes Blog Week so I can’t wait to find some friends!


You can find all the participants for today’s topic here: Find a Friend Link List

May 04

Diabetes After College

In about a week and a half I will enter my 4th year of having diabetes.

In about two weeks I will graduate college, after a 4 year program.

This has me thinking: I don’t know what it’s like to have diabetes, outside of college. Sure I had about 4 months prior to my freshman year, but those 4 months were filled with learning what diabetes was, how to count carbs, how to properly dose insulin, how to change my own ratios, etc. I remember I was on the “speedy” track of diabetes education at the local Children’s Hospital (granted I was 18, but my primary doctor figured it would be the most useful education-wise. Best decision he ever made in my 18 years of life).

Anyway, once I went to college, I found a local nurse practitioner (NP) and she was so awesome. She helped me get on a pump 9 months after diagnosis and helped me figure out how college and everything that comes with it (abnormal schedule, abnormal food (if you can call it that) from the cafeteria, stress, etc.). So I adapted. I learned about diabetes while I learned about college. I discovered diabetes and food poisoning, diabetes and all-nighters, diabetes and exam week, diabetes and roommates, diabetes and abnormal schedules, diabetes and well, pretty much anything else you can think of.

Well now, here I sit, 15.5 days away from college graduation and I am wondering what life after college will bring and what diabetes after college will bring. Will I better manage it? Will I eat better? Will my (hopefully) regular schedule help with the slowly upward creeping A1C? Will I take a more proactive role in my diabetes treatment?

I know the majority of that is up to me and I am hoping that I can do that – especially the better management and proactive role, but it’s still a mystery as to how much will actually be different. Perhaps nothing… or perhaps everything.

In time, I will find out.

Mar 28

Sensor Changes

I had my routine 3-month appointment today with my endo. I was telling her I found it hard to routinely change my sensor because I almost never had time to do so unless at night. Well this posed a problem because calibration is required within 6 hours after starting the sensor. I don’t want to be bothered with that alarm in the middle of the night – and if I calibrate too soon to the start of the sensor, it tends to lose life a lot quicker. So she came up with a suggestion. An “ahha” moment of sorts for me because it’s obvious, but something I didn’t think about.

She suggested I put in a new sensor the night before I knew the one I had on was going to be a goner. This way it would be ready to go as soon as the current one was a goner. This would also avoid the 2 hour wait time before the sensor is “wet”.

The only downside of this could be if the sensor expires before I prepare. But otherwise I really like this idea and I’m excited to try it!

Anyone else have a similar routine?

Mar 22

Update… in bullets!

As you can see I haven’t blogged lately, so I’m here to update about my life in the past 4 months! The easiest way to do this… bullets!

  • As of Dec. 24th – I’m engaged! And SOOO excited :)
    • Wedding date has been set for May 18, 2013. Other wedding plans will be worked on after I graduate.
  • Speaking of graduation: Only 58 days left!
    • I’m excited, but the big black hole that comes after May 19th is nerve wracking. I can’t plan anything because I don’t know what I’ll be doing or where I’ll be living… scary!
  • My last A1C went up, but not much. I blamed stress of school. But I also know I need to keep better control and may better attention. I go back on Monday for lab work, then my appointment on Tuesday.
  • My kidney tests came back abnormal last time. It worried me, but my doctor said that it was probably just a fluke since I’m already on an ace inhibitor and having no other symptoms. I’ll be retested for that on Monday.
  • I’m currently on spring break — spending the time with my fiance at his house — and all I’ve learned in the past week is that the cat and dog sleep all day!
  • I scheduled my first job interview for next week! Super excited, nervous… but any chance to fill that big black hole I referred to is something I have hope for
  • I lied… I also learned that on spring break my blood sugars don’t have any sort of planned way about them. My usual routine has gone… out. the. window.
That’s it for now! I need to go eat lunch now.

 

Dec 06

Diabetes Unexplained…

So about a week ago, I thought I had been cured. I was eating what I normally eat and I knew exactly what my blood sugar was going to do – except it didn’t. The insulin lowered my blood glucose but the food didn’t steady it out. Low. It continued all day. I even ate a bag of chips, insulin free – nothing. Steady blood sugar. I took advantage of this whirlwind of a day and had a small mint malt from Culvers. I spiked to around 150, but came back down immediately. This NEVER happens when eating a malt. Diabetes Unexplained.

Now take yesterday – I was making puppy chow for an organization bake sale. I love puppy chow, but I think I’ve made it once in the 3.5 years since I was diagnosed with type 1. I kept a bag for me and bolused what I figured was necessary. Boy was I wrong. That powder sugar does wonders to glucose levels. Within 3 hours I was around 380s. I corrected. I tested before I went to bed… 120 – awesome! but I looked at my cgm and it said I was still in the 200′s dropping double arrows. Hmm… that means a low is coming. Great! I set a temp basal, hoping it would offset the drop.
around 1AM – Woke up hot and sweaty, but cold. I kept drifting in and out of sleep thinking I was just dreaming. Finally I woke up and tested… 39. Crap! That’s a pretty good low. I felt awful. I went to the kitchen and I barely remember what I ate.
around 3AM – BEEP BEEP BEEP! Pump wakes me up – I’m high! Oh what do you know. Shut off the alarm. Fell asleep.
around 6AM – BEEP BEEP BEEP! Woken up again. Still high. Knowing I had to get up in 15 mins, fell back asleep.
Alarm goes off. I snooze. Wake up 15 minutes later. Shower. Test – 197. Oh right – I was high half the night. Crap!
Now I’ve been high all day. Even with corrections!  Diabetes Unexplained.

If you know me, I’m a planner. I need to have everything planned or I get anxious. There are some things that I can get away with, without planning – but my daily schedule and events, etc. must be planned. I even have practically everyday of my winter break scheduled already. And it’s frustrating me beyond words that I can not plan for after graduation.

But anyway – diabetes throws me for a loop. I can’t plan it. I don’t think it even plans itself. But I’ve learned in the past 3.5 years that I just need to mange the diabetes unexplained and go with the flow.

Now if only I had that logic for the rest of my life…

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